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The happy celiac: An oxymoron or a possibility?
Department of Haman and Sport Sciences, University of Cassino, Cassino, Italy
- 1 Department of Haman and Sport Sciences, University of Cassino, Cassino, Italy
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Abstract
Background : Several international studies, confirmed in Italy too, show a hard presence of socio-relational problems inside the celiac population. Methods : Qualitative study involving persons with celiac disease and their families. 25 individual semi-structured interviews were conducted in three Italian regions. Results : Problems of management of social life for celiac persons are experienced, specially in the fields of: school, work, travels and life outside the home. Conclusion : Chronic illness is a “biographical disruption” [1] and the whole society has to be invested to fight the burden of celiac persons in their possibility of access to public life.
KeywordsCeliacSocialQuality of LifeQualitativeChronic Illness
- Bury, M.R. (1982) Chronic illness as biographical disrupttion. Sociology of Health and Illness, 4, 167-182. doi:10.1111/1467-9566.ep11339939
- Apfeldorfer, G. (1995) Mangio dunque sono: Obesità e anomalie del comportamento alimentare. Marsilio, Venezia.
- Esposito, M. (2008) Introduzione. In: Battisti, F.M. and Esposito, M. Eds., Cronicità e dimensioni socio-relazionali. Salute e Società, FrancoAngeli, Milano.
- Strauss, A., et al. (1975) Chronic illness and quality of life. Mosby, St. Louis.
- Green, P.H.R. et al. (2001) Characteristics of adult celiac disease in the USA results of a national survey. American Journal of Gastroenterology, 96, 126-131.
- Lee, A. and Newman, J.M. (2003) Celiac diet: Its impact on quality of life. Journal of the American Dietetic Association, 103, 1533-1535. doi:10.1016/j.jada.2003.08.027
- Karajeh, M.A., et al. (2004) Are patients with celiac disease socially restricted by a gluten free diet? Gut, 53, pp. 4-5.
- Cinquetti, et al. (1997) L’adolescente e la malattia celiaca. Pediatria Medica e Chirurgica, 19, pp. 397-399.
- Olsson, C. et al. (2009) Food that makes you different. The stigma experienced by adolescents with celiac disease. Qualitative Health Research, 19, 976-984. doi:10.1177/1049732309338722
- Sverker, A., Hensing, G. and Hallert, C. (2005) “Controlled by food”: Lived experiences of celiac disease. Journal of Human Nutrition and Dietetics, 18, 171-180. doi:10.1111/j.1365-277X.2005.00591.x
- Hallert, C., et al. (2002) Living with celiac disease: Controlled study of the burden of illness. Scandinavian Journal of Gastroenterology, 37, 39-42. doi:10.1080/003655202753387338
- Hallert, C., et al. (2003) Perceptions of health-related quality of life of men and women living with celiac disease. Scandinavian Journal of Caring Sciences, 17, 301- 307. doi:10.1046/j.1471-6712.2003.00228.x
- Roos, S., et al. (2006) Psychosocial well-being of adult coeliac patients treated for ten years. Digestive and Liver Disease, 38, 177-180. doi:10.1016/j.dld.2006.01.004
- Gregory, S. (2005) Living with chronic illness in the family setting. Sociology of Health and Illness, 27, 372-392. doi:10.1111/j.1467-9566.2005.00447.x
- Giddens, A. (1991) Modernity and self-identity. Self and society in the late modern age. Polity, Cambridge.