Internet-Based Support and Coaching for Adolescents and Young Adults with Neuropsychiatric Disorders—The Implementation of an Intervention from an Organizational Perspective — Oak Academic Publishing
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Internet-Based Support and Coaching for Adolescents and Young Adults with Neuropsychiatric Disorders—The Implementation of an Intervention from an Organizational Perspective
Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Gothenburg, Sweden
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Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Gothenburg, Sweden
1 Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Gothenburg, Sweden
2 Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Gothenburg, Sweden
There is a documented and often unmet need for interventions aimed at supporting young people with attention-deficit/hyperactivity disorder (ADHD) and/or autism spectrum disorder (ASD) in their transition between adolescence and adulthood. Difficulties with social interaction, initiation difficulties, and impairments in executive function can complicate visits at a clinic, i.e. traditional treatment, for individuals with neuropsychiatric disorders (NPD). A model for internet-based support and coaching aimed at young people with ASD and/or ADHD was developed and tested at three treatment sites in western Sweden. The implementation was analyzed against an inventory according to which implementations are more likely to be successful if an intervention: 1) has advantages compared to other existing methods, 2) matches the individual and organizational values, norms and work practices of its recipients, 3) is perceived as easy to use, and 4) is adaptable to local conditions and the recipients’ needs. Data were collected through group interviews with professionals involved in the implementation of the intervention. The implementation of the intervention showed promising results on measures such as access, delivery/quality of healthcare services, and equality of distribution of healthcare services. The identified impediments to successful implementation related to a wide range of factors and levels, including the design of the intervention, technical issues, attitudes of staff, organizational culture, and organizational structure at the implementation sites in terms of patient stock, work division, and resource allocation. The results are consistent with previous studies that stress the need for multi-component implementation strategies.
Renty, J.O. and Roeyers, H. (2006) Quality of Life in High-Functioning Adults with Autism Spectrum Disorder. The Predictive Value of Disability and Support Charac-teristics. Autism, 10, 511-524. https://doi.org/10.1177/1362361306066604
Taylor, N., Fauset, A. and Harpin, V. (2010) Young Adults with ADHD: An Analysis of Their Service Needs on Transfer to Adult Services. Archives of Disease in Childhood, 95, 513-517. https://doi.org/10.1136/adc.2009.164384
Kolar, D., Keller, A., Golfinopoulos, M., Cumyn, L., Syer, C. and Hechtman, L. (2008) Treatment of Adults with Attention-Deficit/Hyperactivity Disorder. Neuro-psychiatric Disease and Treatment, 4, 389-403.
Torgersen, T., Gjervan, B. and Rasmussen, K. (2008) Treatment of Adult ADHD: Is Current Knowledge Useful to Clinicians? Neuropsychiatric Disease and Treatment, 4, 177-186. https://doi.org/10.2147/NDT.S1223
Levine, M. (2005) Ready or Not, Here Life Comes. Simon & Schuster, New York.
Bellini, S. (2004) Social Skill Deficits and Anxiety in High-Functioning Adolescents with Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities, 19, 78-86. https://doi.org/10.1177/10883576040190020201
Farrugia, S. and Hudson, J. (2006) Anxiety in Adolescents with Asperger Syndrome: Negative Thoughts, Behavioral Problems, and Life Interference. Focus on Autism and Other Developmental Disabilities, 21, 25-35. https://doi.org/10.1177/10883576060210010401
Singh, S.P., Paul, M., Ford, T., Kramer, T., Weaver, T., McLaren, S., Hovish, K., Islam, Z., Belling, R. and White, S. (2010) Process, Outcome and Experience of Transition from Child to Adult Mental Healthcare: Multiperspective Study. The British Journal of Psychiatry, 197, 305-312. https://doi.org/10.1192/bjp.bp.109.075135
Nadig, A., Lee, I., Singh, L., Bosshart, K. and Ozonoff, S. (2010) How Does the Topic of Conversation Affect Verbal Exchange and Eye Gaze? A Comparison between Typical Development and High-Functioning Autism. Neuropsychologia, 48, 2730-2739. https://doi.org/10.1016/j.neuropsychologia.2010.05.020
Wentz, E., Nydén, A. and Krevers, B. (2012) Development of an Internet-Based Support and Coaching Model for Adolescents and Young Adults with ADHD and Autism Spectrum Disorders: A Pilot Study. European Child & Adolescent Psychiatry, 21, 611-622. https://doi.org/10.1007/s00787-012-0297-2
Jordan, C.J. (2010) Evolution of Autism Support and Understanding via the World Wide Web. Intellectual and Developmental Disabilities, 48, 220-227. https://doi.org/10.1352/1934-9556-48.3.220
Sleeper-Triplett, J. (2008) The Effectiveness of Coaching for Children and Teens with AD/HD. Pediatric Nursing, 34, 433-435.
Mesibov, G.B. (1984) Social Skills Training with Verbal Autistic Adolescents and Adults: A Program Model. Journal of Autism and Developmental Disorders, 14, 395-404. https://doi.org/10.1007/BF02409830
Bodenheimer, T. (1999) The American Health Care System: The Movement for Improved Quality in Health Care. The New England Journal of Medicine, 340, 488-492. https://doi.org/10.1056/NEJM199902113400621
Bero, L., Grilli, R., Grimshaw, J., Harvey, E., Oxman, A.D. and Thomson, M.A. (1998) Closing the Gap between Research and Practice: An Overview of Systematic Reviews of Interventions to Promote the Implementation of Research Findings. BMJ, 317, 465-468. https://doi.org/10.1136/bmj.317.7156.465
Watson, R., Parr, J.R., Joyce, C., May, C. and Le Couteur, A.S. (2011) Models of Transitional Care for Young People with Complex Health Needs: A Scoping Review. Child: Care, Health and Development, 37, 780-791. https://doi.org/10.1111/j.1365-2214.2011.01293.x
Acocella, I. (2012) Thefocus Groups in Social Research: Advantages and Disadvantages. Quality & Quantity, 46, 1125-1136. https://doi.org/10.1007/s11135-011-9600-4
Britten, N. (1999) Qualitative Interviews in Healthcare. In: Pope, C. and Mays, N., Eds., Qualitative Research in Health Care, 2nd Edition, BMJ Books, London, 11-19.
Braun, V. and Clarke, V. (2006) Using Thematic Analysis in Psychology. Qualitative Research in Psychology, 3, 77-101. https://doi.org/10.1191/1478088706qp063oa
Fixsen, D.L., Naoom, S.F., Blase, K.A., Friedman, R.M. and Wallace, F. (2005) Implementation Research: A Synthesis of the Literature. University of South Florida, Louise de la Parte Florida Mental Health Institute, the National Implementation Research Network, Tampa.
Greenhalgh, T., Robert, G., Bate, P., Macfarlane, F. and Kyriakidou, O. (2005) Diffusion of Innovations in Health Service Organizations: A Systematic Literature Review. Blackwell Publishing, Oxford. https://doi.org/10.1002/9780470987407
Denis, J.L., Hébert, Y., Langley, A., Lozeau, D. and Trottier, L.H. (2002) Explaining Diffusion Patterns for Complex Health Care Innovations. Health Care Manage Review, 27, 60-73. https://doi.org/10.1097/00004010-200207000-00007
Craig, J. and Patterson, V. (2005) Introduction to the Practice of Telemedicine. Journal of Telemedicine and Telecare, 11, 3-9. https://doi.org/10.1258/1357633053430494
Sood, S., Mbarika, V., Jugoo, S., Dookhy, R., Doarn, C.R., Prakash, N. and Merrell, R.C. (2007) What Is Telemedicine? A Collection of 104 Peer-Reviewed Perspectives and Theoretical Underpinnings. Telemedicine and E-Health, 13, 573-590. https://doi.org/10.1089/tmj.2006.0073
Lehoux, P., Sicotte, C., Denis, J.L., Berg, M. and Lacroix, A. (2002) The Theory of Use behind Telemedicine: How Compatible with Physicians’ Clinical Routine? Social Science & Medicine, 54, 889-904. https://doi.org/10.1016/S0277-9536(01)00063-6
Shiferaw, F. and Zolfo, M. (2012) The Role of Information Communication Technology (ICT) towards Universal Health Coverage: The First Steps of a Telemedicine Project in Ethiopia. Global Health Action, 5, 15638. https://doi.org/10.3402/gha.v5i0.15638
Oh, H., Rizo, C., Enkin, M. and Jadad, A. (2005) What Is eHealth (3): A Systematic Review of Published Definitions. Journal of Medical Internet Research, 7, e1. https://doi.org/10.2196/jmir.7.1.e1
Eysenbach, G. (2001) What Is E-Health? Journal of Medical Internet Research, 3, e20. https://doi.org/10.2196/jmir.3.2.e20
Heinzelmann, P.J., Lugn, N.E. and Kvedar, J.C. (2005) Telemedicine in the Future. Journal of Telemedicine and Telecare, 11, 384-390. https://doi.org/10.1258/135763305775013554
Jennett, P.A., Affleck Hall, L., Hailey, D., Ohinmaa, A., Anderson, C., Thomas, R., Young, B., Lorenzetti, D. and Scott, R.E. (2003) The Socio-Economic Impact of Telehealth: A Systematic Review. Journal of Telemedicine and Telecare, 9, 311-320. https://doi.org/10.1258/135763303771005207
Lehoux, P., Battista R.N. and Lance, J.-M. (2000) Telehealth: Passing Fad or Lasting Benefits? Canadian Journal of Public Health, 91, 277-280.
Blaya, J.A., Fraser, H.S.F. and Holt, B. (2010) E-Health Technologies Show Promise Health Affairs, 29, 244-251. https://doi.org/10.1377/hlthaff.2009.0894
Marcin, J.P., Ellis, J., Mawis, R., Nagrampa, E., Nesbitt, T.S. and Dimand, R.J. (2004) Using Telemedicine to Provide Pediatric Subspecialty Care to Children with Special Health Care Needs in an Underserved Rural Community. Pediatrics, 113, 1-6. https://doi.org/10.1542/peds.113.1.1
Mishra, S.K., Kapoor, L. and Singh, I.P. (2009) Telemedicine in India: Current Scenario and the Future. Telemedicine and E-Health, 15, 568-575. https://doi.org/10.1089/tmj.2009.0059
Mair, F.S., May, C., Finch, T., Murray, E., Anderson, G., Sullivan, F., O’Donnell, C., Wallace, P. and Epstein, O. (2007) Understanding the Implementation and Integration of E-Health Services. Journal of Telemedicine and Telecare, 13, 36-37. https://doi.org/10.1258/135763307781645112
Chiasson, M.W. and Davidson, E. (2004) Pushing the Contextual Envelope: Developing and Diffusing IS Theory for Health Information Systems Research. Information and Organization, 14, 155-188. https://doi.org/10.1016/j.infoandorg.2004.02.001
Aas, M.I. (2001) A Qualitative Study of the Organizational Consequences of Telemedicine. Journal of Telemedicine and Telecare, 7, 18-26. https://doi.org/10.1258/1357633011936093
May, C., Gask, L., Atkinson, T., Ellis, N., Mair, F. and Esmail, A. (2001) Resisting and Promoting New Technologies in Clinical Practice: The Case of Telepsychiatry. Social Science & Medicine, 52, 1889-1901. https://doi.org/10.1016/S0277-9536(00)00305-1
Pinto, J.K. and Slevin, D.P. (1988) Critical Success Factors in Effective Project Implementation. In: Cleland, D.I. and King, W.R., Eds., Project Management Handbook, 2nd Edition, Van Nostrand Reinhold, New York, 902-909.
Klein, K.J. and Sorra, J.S. (1996) The Challenge of Innovation Implementation. Academy of Management Review, 21, 1055-1080.
Aubert, B.A. and Hamel, G. (2001) Adoption of Smart Cards in the Medical Sector: The Canadian Experience. Social Science & Medicine, 53, 879-894. https://doi.org/10.1016/S0277-9536(00)00388-9
Rohrbach, L.A., Grana, R., Sussman, S. and Valente, T.W. (2006) Type II Translation: Transporting Prevention Interventions from Research to Real-World Settings. Evaluation & the Health Professions, 29, 302-333. https://doi.org/10.1177/0163278706290408
Meyer, A. and Goes, J. (1988) Organizational Assimilation of Innovations: A Multilevel Contextual Analysis. Academy of Management Journal, 31, 897-923. https://doi.org/10.2307/256344
Glaser, E.M. and Backer, T.E. (1980) Durability of Innovations: How Goal Attainment Scaling Programs Fare over Time. Community Mental Health Journal, 16, 130-143. https://doi.org/10.1007/BF00778585
McLaren, P. (2003) Telemedicine and Telecare: What Can It offer Mental Health Services? Advances in Psychiatric Treatment, 9, 54-61. https://doi.org/10.1192/apt.9.1.54
Tangalos, E.G. (1995) Enabling Technologies for Telepresence. Proceedings of the National Forum: Military Telemedicine On-Line Today: Research, Practice, and Opportunities, McLean, March 27-29, 5-20.
Aranda, K. (2005) Community Nurses’ Talk of Equality and the Discursive Constitution of Selves. Journal of Advanced Nursing, 51, 131-139. https://doi.org/10.1111/j.1365-2648.2005.03476.x
Haug, M. R. (1988) Power, Authority and Health Behavior. In: Gochman, D.S., Ed., Health Behavior: Emerging Research Perspectives, Plenum Press, New York, 325-336. https://doi.org/10.1007/978-1-4899-0833-9_18
Little, P., Everitt, H., Williamson, I., Warner, G., Moore, M., Gould, C., Ferrier, K. and Payne, S. (2001) Preference of Patients for Patient Centered Approach to Consultation in Primary Care: Observational Study. BMJ, 322, 468-472. https://doi.org/10.1136/bmj.322.7284.468
Sackett, D.L., Rosenberg, W.M.C., Gray, J.A., Haynes, R.B. and Richardson, W.S. (1996) Evidence-Based Medicine: What It Is, and What Isn’t It. BMJ, 312, 71-72. https://doi.org/10.1136/bmj.312.7023.71
Laine, C. and Davidoff, F. (1996) Patient-Centered Medicine. A Professional Evolution. JAMA, 275, 152-156. https://doi.org/10.1001/jama.1996.03530260066035
Gerteis, M., Edgman-Levitan, S., Daley, J. and Delbanco, T.L. (1993) Through the Patient’s Eyes: Understanding and Promoting Patient-Centered Care. Jossey-Bass, San Francisco.
Mair, F.S., May, C., O’Donnell, C., Finch, T., Sullivan, F. and Murray, E. (2012) Factors That Promote or Inhibit the Implementation of E-Health Systems: An Explanatory Systematic Review. Bulletin of the World Health Organization, 90, 357-364. https://doi.org/10.2471/BLT.11.099424
Helfrich, C.D., Weiner, B.J., McKinney, M.M. and Minasian, L. (2007) Determinants of Implementation Effectiveness. Adapting a Framework for Complex Innovations. Medical Care Research and Review, 64, 279-303. https://doi.org/10.1177/1077558707299887
Ashforth, B. and Mael, F.A. (1998) The Power of Resistance: Sustaining Valued Identities. In: Kramer, R.M. and Neale, M.A., Eds., Power and Influence in Organizations, Sage, Thousand Oaks, 89-120. https://doi.org/10.4135/9781483345291.n5
Brower, R.S. and Abolafia, M.F. (1995) The Structural Embeddedness of Resistance among Public Managers. Group Organization Management, 20, 149-166. https://doi.org/10.1177/1059601195202005
Ford, E.W., Menachemi, N., Peterson, L.T. and Huerta, T.R. (2009) Resistance Is Futile: But It Is Slowing the Pace of EHR Adoption Nonetheless. Journal of the American Medical Informatics Association, 16, 274-281. https://doi.org/10.1197/jamia.M3042
Lagarde, M., Smith Paintain, L., Antwi, G., Jones, C., Greenwood, B., Chandramohan, D., Tagbor, H. and Webster, J. (2011) Evaluating Health Workers’ Potential Resistance to New Interventions: A Role for Discrete Choice Experiments. PLoS ONE, 6, e23588. https://doi.org/10.1371/journal.pone.0023588
Jones, R.A., Jimmieson, N.L. and Griffiths, A. (2005) The Impact of Organizational Culture and Reshaping Capabilities on Change Implementation Success: The Mediating Role of Readiness for Change. Journal of Management Studies, 42, 361-386. https://doi.org/10.1111/j.1467-6486.2005.00500.x
Gillberg, C. (2010) The ESSENCE in Child Psychiatry: Early Symptomatic Syndromes Eliciting Neurodevelopmental Clinical Examinations. Research in Developmental Disabilities, 31, 1543-1551. https://doi.org/10.1016/j.ridd.2010.06.002
Kadesjö, B. and Gillberg, C. (2001) The Comorbidity of ADHD in the General Population of Swedish School Age Children. Journal of Child Psychology and Psychiatry, 42, 487-492. https://doi.org/10.1111/1469-7610.00742
Ferlie, E.B. and Shortell, S.M. (2001) Improving the Quality of Health Care in the United Kingdom and the United States: A Framework for Change. Milbank Quarterly, 79, 281-315. https://doi.org/10.1111/1468-0009.00206
Glisson, C. and Schoenwald, S. (2005) The ARC Organizational and Community Intervention Strategy for Implementing Evidence-Based Children’s Mental Health Treatments. Mental Health Services Research, 7, 243-259. https://doi.org/10.1007/s11020-005-7456-1
Grimshaw, J., Shirran, L., Thomas, R., Mowatt, G., Fraser, C., Bero, L., Grilli, R, Harvey, E., Oxman, A. and O’Brien, M.A. (2001) Changing Provider Behaviour: An Overview of Systematic Reviews of Interventions. Medical Care, 39, II2-II45. https://doi.org/10.1097/00005650-200108002-00002
Grol, R. and Grimshaw, J. (1999) Evidence-Based Implementation of Evidence-Based Medicine. The Joint Commission Journal on Quality Improvement, 25, 503-513. https://doi.org/10.1016/S1070-3241(16)30464-3
Grol, R. and Grimshaw, J. (2003) From Best Evidence to Best Practice: Effective Implementation of Change in Patients’ Care. Lancet, 362, 1225-1230. https://doi.org/10.1016/S0140-6736(03)14546-1
HedmanAhlström, B. and Wentz, E. (2015) Performance and Social Life Perceived by Young Persons with ADHD and Autism: A Chat-Log Analysis. Psychology Research, 5, 114-124.
HedmanAhlström, B. and Wentz, E. (2014) Difficulties in Everyday Life: Young Persons with Attention-Deficit/Hyperactivity Disorder and Autism Spectrum Disorders Perspectives. A Chat-Log Analysis. International Journal of Qualitative Studies on Health and Well-Being, 9, 23376.
Hoagwood, K., Hibbs, E., Brent, D. and Jensen, P.J. (1995) Efficacy and Effectiveness in Studies of Child and Adolescent Psychotherapy. Journalof Consulting and Clinical Psychology, 63, 683-687. https://doi.org/10.1037/0022-006X.63.5.683
Guldbrandsson, E. (2007) Från nyhet till vardagsnytta: Om implementeringens mödosamma konst: En Forskningssammanställning. Statens Folkhälsoinstitut, 20.
Kazdin, A.E. (2008) Evidence-Based Treatment and Practice. New Opportunities to Bridge Clinical Research and Practice, Enhance the Knowledge Base, and Improve Patient Care. American Psychologist, 63, 146-159. https://doi.org/10.1037/0003-066X.63.3.146