A Qualitative Study on the Negative Emotions of Mothers during Chemotherapy of Their Children with Malignant Brain Tumors
- 1 Department of Neurosurgery, Sun Yat-sen University Cancer Center, Guangzhou, China
- 2 Department of Neurosurgery, Sun Yat-sen University Cancer Center, Guangzhou, China
- 3 Department of Neurosurgery, Sun Yat-sen University Cancer Center, Guangzhou, China
Abstract
Objective: To explore the negative emotions of mothers during chemotherapy of their children with malignant brain tumors. Methods: The phenomenological method for qualitative studies was adopted; convenience sampling was used to conduct semi-structured interviews to the mothers of 9 children with malignant brain tumors who received chemotherapy from June 2019 to December 2019; the Colaizzi 7-step analytical method was implemented to collate and analyze the original data. Results: The results were summarized into six subjects: stressed, exhausted because of trying to control everything in home care, prone to excessive care, financially burdened, desperate for knowledge of patient care, and desperate for psychosocial support. Conclusions: Understanding the real experiences and inner feelings of mothers during chemotherapy of their children with malignant brain tumors is helpful for medi cal staff to learn about the psychological distress and needs of mothers of children with malignant brain tumors, so as to give them psychological support and even social support, and help the mothers and the families of children with malignant brain tumors get through a special period.
- Zhou, Y.-L., An, J.-L. and Tian, L. (2015) Epidemiological Analysis of Childhood Malignant Tumors in China. Chinese Journal of Contemporary Pediatrics, 17, 649-654.
- Kochanek, K.D., Murphy, S.L. and Xu, J. (2015) Deaths: Final Data for 2011. National Vital Statistics Reports, 63, 1-120.
- Brown, R.T., Madan-Swain, A. and Lambert, R. (2003) Posttraumatic Stress Symptoms in Adolescent Survivors of Childhood Cancer and Their Mothers. Journal of Traumatic Stress, 16, 309-318. https://doi.org/10.1023/A:1024465415620
- Aung, K.T., Muda, S.M. and Jamaludin, K. (2016) Oncology Nursing: A Preliminary Study on Experiences of Mothers of Childhood Cancer Survivors in Kuantan, Pahang, Malaysia. International Journal of Health Sciences & Research, 6, 306-316.
- Kim, Y. and Given, B.A. (2010) Quality of Life of Family Caregivers of Cancer Survivors: Across the Trajectory of the Illness. Cancer, 112, 2556-2568. https://doi.org/10.1002/cncr.23449
- Wang, J., Zhao, Y.Y., Yang, Q.Y., Sai, K., Ke, C., Zhang, X., et al. (2015) Clinical Analysis of 219 Participants of Central Nervous System Tumor in Children. Guangdong Medical Journal, 36, 2621-2624.
- Streisand, R., Mackey, E.R. and Herge, W. (2009) Associations of Parent Coping, Stress, and Well-Being in Mothers of Children with Diabetes: Examination of Data from a National Sample. Maternal & Child Health Journal, 14, 612-617. https://doi.org/10.1007/s10995-009-0497-7
- Litzelman, K., Catrine, K., Gangnon, R. and Witt, W.P. (2011) Quality of Life among Parents of Children with Cancer or Brain Tumors: The Impact of Child Characteristics and Parental Psychosocial Factors. Quality of Life Research, 20, 1261-1269. https://doi.org/10.1007/s11136-011-9854-2
- Leow, K., Lynch, M.F. and Lee, J. (2019) Social Support, Basic Psychological Needs, and Social Well-Being among Older Cancer Survivors. The International Journal of Aging and Human Development, 92, 100-104. https://doi.org/10.1177/0091415019887688
- Wu, F. and Sheng, Y. (2019) Social Support Network, Social Support, Self-Efficacy, Health-Promoting Behavior and Healthy Aging among Older Adults: A Pathway Analysis. Archives of Gerontology and Geriatrics, 85, Article ID: 103934. https://doi.org/10.1016/j.archger.2019.103934
- Li, Y.N., Hu, L.Y., Mao, X.E., Shen, Y.J., Xue, H.P., Hou, P., et al. (2020) Health Literacy, Social Support, and Care Ability for Caregivers of Dementia Patients: Structural Equation Modeling. Geriatric Nursing, 41, 600-607. https://doi.org/10.1016/j.gerinurse.2020.03.014