Family Caregiving in Cancer Care in Togo: Tasks, Consequences, and Unmet Needs

Abstract

Background: Cancer poses a significant public health challenge for patients and their caregivers. Often inadequately trained or unprepared, these caregivers perform various support tasks and face numerous challenges related to their role. However, their needs are seldom assessed systematically. This study aimed to explore the tasks, consequences, and needs of family caregivers for cancer patients in Togo. Methods: A descriptive cross-sectional study was conducted from March to May 2024 in the Oncology Unit of Sylvanus Olympio University Hospital. Caregivers of cancer patients were selected through purposive sampling. Data were collected using a structured questionnaire that included the sociodemographic characteristics of both caregivers and patients. The CaTCoN questionnaire was used to assess the tasks, consequences, and needs of caregivers. Statistical analysis was performed with SPSS software. Results: One hundred twenty-three family caregivers of cancer patients participated in the survey. The average age was 40 ± 5 years. The children of the patients were the most represented group. For support, 92.6% of caregivers provided practical help and 96.8% offered psychological support, while 83.6% reported feeling overwhelmed by their responsibilities. Most caregivers reported feeling stressed (95.9%) and experiencing a negative impact on their physical health (69.1%). Additionally, 89.4% faced negative financial consequences, and 30.9% encountered absenteeism issues. For 69.1% of caregivers, the illness reduced the time they spent with their family. Regarding positive impacts, 70.5% became more aware of life’s essentials, and 84.6% increased their appreciation of relationships with others. Caregivers expressed a need for information in various areas. Thirty-one caregivers (25.2%) expressed a desire to see a psychologist, and 65% felt the need for a break. Conclusion: Caregivers face an overwhelming array of responsibilities, resulting in significant emotional, financial, and professional consequences. Nonetheless, their role strengthens family bonds and raises awareness of life priorities. They need access to information, training, respite, and support.