The DeafBlind Episteme Scale was used to examine the perspectives of DeafBlind individuals regarding their identities, lived experiences, and language attitudes. Exploratory factor analysis was applied to analyze the data. Findings revealed that DeafBlind individuals rely on touch to access information through tactile languages. However, barriers to this access can result in communication breakdowns and negative experiences, limiting their ability to navigate audiovisual-centered societies. These challenges shape DeafBlind individuals’ perceptions of their positionalities within society, which were identified as tactile modality, distantism, vidism, and acceptance.
Aldalur, A., Pick, L. H., & Schooler, D. (2021). Navigating Deaf and Hearing Cultures: An Exploration of Deaf Acculturative Stress. The Journal of Deaf Studies and Deaf Education, 26, 299-313. https://doi.org/10.1093/deafed/enab014
American Association of the Deaf Blind (2009). How Do People Become Deaf-Blind? Frequently Asked Questions about Deaf-Blindness . https://www.aadb.org/FAQ/faq_DeafBlindness.html
Arndt, K., & Parker, A. (2016). Perceptions of Social Networks by Adults Who Are Deafblind. American Annals of the Deaf, 161, 369-383. https://doi.org/10.1353/aad.2016.0027
Bauman, H. D., & Murray, J. J. (2017). Sign Languages. In Handbook of Language and Society (pp. 243-260). Oxford University Press. https://doi.org/10.1093/oxfordhb/9780190212896.013.28
Baumeister, R. F. (1997). Identity, Self-Concept, and Self-Esteem. In Handbook of Personality Psychology (pp. 681-710). Elsevier. https://doi.org/10.1016/b978-012134645-4/50027-5
Berge, S. S., & Raanes, E. (2013). Coordinating the Chain of Utterances: An Analysis of Communicative Flow and Turn Taking in an Interpreted Group Dialogue for Deaf-Blind Persons. Sign Language Studies, 13, 350-371. https://doi.org/10.1353/sls.2013.0007
Boone, H., & Boone, D. (2012). Analyzing Likert Data. Journal of Extension, 50, 1-5. https://doi.org/10.34068/joe.50.02.48
Bradbury, J., Clark, J. L., Grossman, R., Herbers, J., Magliocchino, V., Norman, J., Romilus, Y., Sirvage, R., & Van Der Mark, L. (2019). ProTactile Shakespeare: Inclusive Theater by/for the Deafblind. Sha kespeare Studies , 47, 15-81.
Caselli, N., Pyers, J., & Lieberman, A. M. (2021). Deaf Children of Hearing Parents Have Age-Level Vocabulary Growth When Exposed to American Sign Language by 6 Months of Age. The Journal of Pediatrics, 232, 229-236. https://doi.org/10.1016/j.jpeds.2021.01.029
Chapman, M., & Dammeyer, J. (2017). The Significance of Deaf Identity for Psychological Well-Being. The Journal of Deaf Studies and Deaf Education, 22, 187-194. https://doi.org/10.1093/deafed/enw073
Checchetto, A., Geraci, C., Cecchetto, C., & Zucchi, S. (2018). The Language Instinct in Extreme Circumstances: The Transition to Tactile Italian Sign Language (List) by Deafblind Signers. Glossa: A Journal of General Linguistics, 3, 1-28. https://doi.org/10.5334/gjgl.357
Clark, J. L. (2017). Distantism. Wordgathering : A Journal of Disability Poetry and Literature, 13 . https://wordgathering.syr.edu/past_issues/issue43/essays/clark.html
Crenshaw, K. W. (2013). Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color. In The Public Nature of Private Violence (pp. 93-118). Routledge.
Cue, K. R. (2020). Hegemonic Deaf and Hearing Cultures in the United States: A Deaf Ecological Systems Perspective. Doctoral Dissertation, Lamar University.
Cue, K. R., Pudans-Smith, K. K., Wolsey, J. A., Wright, S. J., & Clark, M. D. (2019). The Odyssey of Deaf Epistemology: A Search for Meaning-Making. American Annals of the Deaf, 164, 395-422. https://doi.org/10.1353/aad.2019.0017
Danermark, B. D., & Möller, K. (2008). Deafblindness, Ontological Security, and Social Recognition. International Journal of Audiology, 47, S119-S123. https://doi.org/10.1080/14992020802307388
De Vos, C. (2012). Sign-Spatiality in Kata Kolok. Sign Language & Linguistics, 16, 277-284. https://doi.org/10.1075/sll.16.2.08vos
Ding, C., Fulmer, G., Hoffman, L., Hand, B., & Suh, J. K. (2023). The Dimensionality of the Epistemic Orientation Survey and Longitudinal Measurement Invariance for the Short Form of EOS (EOS-SF). Frontiers in Education, 8, Article 1239751. https://doi.org/10.3389/feduc.2023.1239751
Eckert, R. C., & Rowley, A. J. (2013). Audism. Humanity & Society, 37, 101-130. https://doi.org/10.1177/0160597613481731
Edwards, T. (2014a). Language Emergence in Seattl e Deafblind Community . Doctoral Dissertation, University of California-Berkeley. https://escholarship.org/uc/item/2s6504k8
Edwards, T. (2014b). From Compensation to Integration: Effects of the Pro-Tactile Movement on the Sublexical Structure of Tactile American Sign Language. Journal of Pragmatics, 69, 22-41. https://doi.org/10.1016/j.pragma.2014.05.005
Edwards, T. (2015). Bridging the Gap between Deafblind Minds: Interactional and Social Foundations of Intention Attribution in the Seattle Deafblind Community. Frontiers in Psychology, 6, Article 1497. https://doi.org/10.3389/fpsyg.2015.01497
Edwards, T. (2017). Sign-Creation in the Seattle Deafblind Community. G esture, 16, 305-328. https://doi.org/10.1075/gest.16.2.06edw
Edwards, T. (2018). Re‐Channeling Language: The Mutual Restructuring of Language and Infrastructure among Deafblind People at Gallaudet University. Journal of Linguistic Anthropology, 28, 273-292. https://doi.org/10.1111/jola.12199
Edwards, T. (2022). The Difference Intersubjective Grammar Makes in Protactile Deafblind Communities. Lingua, 273, Article 103303. https://doi.org/10.1016/j.lingua.2022.103303
Edwards, T., & Brentari, D. (2020). Feeling Phonology: The Conventionalization of Phonology in Protactile Communities in the United States. Language, 96, 819-840. https://doi.org/10.1353/lan.2020.0063
Emens, E. F. (2021), Disability Admin: The Invisible Costs of Being Disabled. Minnesota Law Review, 105 , 2329-2377. https://scholarship.law.columbia.edu/faculty_scholarship/2938
Fidrocki, M. (2018). Q & A: How Pro-Tactile American Sign Language: (PTASL) Is Changing the Conversation . Western Oregon University. https://wou.omeka.net/s/repository/item/12043
Field, A. (2009). Discovering Statistics Using SPSS: Introducing Statistical Method . Sage Publications.
Fischer, L. C., & McWhirter, J. J. (2001). The Deaf Identity Development Scale: A Revision and Validation. Journal of Counseling Psychology, 48, 355-358. https://doi.org/10.1037/0022-0167.48.3.355
Freire, P. (2018). Pedagogy of the Oppressed. In Toward a Just World Order (pp. 47-54). Routledge. https://doi.org/10.4324/9780429269400-8
Friedner, M., & Kusters, A. (2020). Deaf Anthropology. Annual Review of Anthropology, 49, 31-47. https://doi.org/10.1146/annurev-anthro-010220-034545
Gertz, G. (2003). Dysconscious Audism and Critical Deaf Studies: Deafcrit’s Analysis of Unconscious Internalization of Hegemony within the Deaf Community . University of California.
Glickman, N. S. (1993). Deaf Identity Development: Construction and Validation of Theoretical Model . University of Massachusetts. https://doi.org/10.1037/t15703-000
Goffman, E. (2009). Stigma: Notes on the Management of Spoiled Identity. Simon and Schuster.
Goodwin, S. E. (2020). The Challenges That the Deafblind Community Faces without Access during a Pandemic. ReDEAFining Academic Collaboration, 1 , 15-17. https://www.lamar.edu/fine-arts-communication/_files/documents/deaf-studies-deaf-ed/rac1-1
Gordon, L. (2016). ‘Intersectionality’, Socialist Feminism and Contemporary Activism: Musings by a Second‐Wave Socialist Feminist. Gender & History, 28, 340-357. https://doi.org/10.1111/1468-0424.12211
Granda, A., & Nuccio, J. (2018). Protactile Principles . http://wasli.org/wp-content/uploads/2018/05/PT-Principles-Movies-Final.pdf
Graves, A. (2022). Checking All the Boxes : A Critical Theory Analysis of Educational Experiences of Congenitall y Deafblind College S tudents . Doctoral Dissertation, Texas Tech University. https://hdl.handle.net/2346/89245
Hauschildt, S. R. (2022). Please Say Tuli with the Capitalized T, Ya . Doctoral Dissertation, Lamar University.
Hauser, P. C., O’Hearn, A., McKee, M., Steider, A., & Thew, D. (2010). Deaf Epistemology: Deafhood and Deafness. American Annals of the Deaf, 154, 486-492. https://doi.org/10.1353/aad.0.0120
Haviland, J. B. (2013). The Emerging Grammar of Nouns in a First Generation Sign Language. Gesture, 13, 309-353. https://doi.org/10.1075/gest.13.3.04hav
Henner, J., & Robinson, O. (2023). Unsettling Languages, Unruly Bodyminds: A Crip Linguistics Manifesto. Journal of Critical Study of Communication and Disability, 1 , 7-37. https://doi.org/10.48516/jcscd_2023vol1iss1.4
Hersh, M. (2013). Deafblind People, Communication, Independence, and Isolation. Journal of Deaf Studies and Deaf Education, 18, 446-463. https://doi.org/10.1093/deafed/ent022
Huddy, L. (2001). From Social to Political Identity: A Critical Examination of Social Identity Theory. Political Psychology, 22, 127-156. https://doi.org/10.1111/0162-895x.00230
Humphries, T. (1975). The Making a Word: Audism .
Hutchins, E. (2010). Cognitive Ecology. Topics in Cognitive Science, 2, 705-715. https://doi.org/10.1111/j.1756-8765.2010.01089.x
Kusters, A. (2014). Language Ideologies in the Shared Signing Community of Adamorobe. Language in Society, 43, 139-158. https://doi.org/10.1017/s0047404514000013
Leigh, I. W., Marcus, A. L., Dobosh, P. K., & Allen, T. E. (1998). Deaf/Hearing Cultural Identity Paradigms: Modification of the Deaf Identity Development Scale. Journal of Deaf Studies and Deaf Education, 3, 329-338. https://doi.org/10.1093/oxfordjournals.deafed.a014360
Leland, A. (2022). Deafblind Communities May Be Creating a New Language of Touch. The New Yorker . https://www.newyorker.com/culture/annals-of-inquiry/deafblind-communities-may-be-creating-a-new-language-of-touch
Maxwell-McCaw, D. L., Leigh, I. W., & Marcus, A. (2000). Social Identity in Deaf Culture: Comparison of Ideologies. Jadara, 33 , 14-28. https://nsuworks.nova.edu/cgi/viewcontent.cgi?article=1856&context=jadara
McAlpine, A. (2017). Keep in Touch: A Comparative Analysis of Visual and Protactile American Sign Language. Honors Senior Theses/Projects. https://wou.omeka.net/s/repository/media/4902
Miller, C. G. (2015). The Deaf-Blind Dilemma. Braille Monitor . https://nfb.org//sites/default/files/images/nfb/publications/bm/bm15/bm1504/bm150402.htm
Morrison, S., & Johnson, N. (2020). Pilot Study: Understanding How Deafblind People Make Meaning of Their Avowed and Ascribed Identities. Deaf Studies Digital Journal, 5 . https://doi.org/10.3998/15499139.0005.004
Nuccio, J. (2008). Seattle’s Deaf-Blind Service Center: A New Vision. Deaf-Blind Perspectives, 15 . http://www.nationaldb.org/dbp/apr2008.htm#dbsc
Nuccio, J. (2020). Coronavirus: Jelica on Deafblind Issues . Deaf Community Center. https://www.facebook.com/watch/?ref=saved&v=3300886649945968
Nuccio, J., & Granada, A. (2013). Welcome to Pro-Tactile: The Deafblind Way. YouTube . https://www.youtube.com/watch?v=l11lahuiHLA
O’Brien, C., Kroner, C., & Placier, P. (2015). Deaf Culture and Academic Culture: Cultivating Understanding across Cultural and Linguistic Boundaries. Journal of Diversity in Higher Education, 8, 104-119. https://doi.org/10.1037/a0038821
Petronio, K., & Dively, V. (2006). Yes, No, Visibility, and Variation in ASL and Tactile Asl. Sign Language Studies, 7, 57-98. https://doi.org/10.1353/sls.2006.0032
Pizzolato, J. E., Chaudhari, P., Murrell, E. D., Podobnik, S., & Schaeffer, Z. (2008). Ethnic Identity, Epistemological Development, and Academic Achievement in Underrepresented Students. Journal of College Student Development, 49, 301-318. https://doi.org/10.1353/csd.0.0020
Protactile Language Interpreting National Education Program (n.d.). Western Oregon Universi ty . https://www.protactilelanguageinterpreting.org/
Pudans-Smith, K. K., Cue, K. R., Wolsey, J. A., & Clark, M. D. (2019). To Deaf or Not to Deaf: That Is the Question. Psychology, 10, 2091-2114. https://doi.org/10.4236/psych.2019.1015135
Quartz (2016). Deafblind Americans Develop a Language That Doesn’t Involve Sight or Sound. Quartz . https://qz.com/758851/deafblind-americans-developed-a-language-that-doesnt-involve-sight-or-sound
Quinto-Pozos, D. (2002). Deictic Points in the Visual-Gestural and Tactile-Gestural Modalities. In Modality and Structure in Signed and Spoken Languages (pp. 442-468). Cambridge University Press. https://doi.org/10.1017/cbo9780511486777.021
Reynolds, K. J. (2015). Social Identity in Social Psychology. In International Encyclopedia of the Social & Behavioral Sciences (pp. 313-318). Elsevier. https://doi.org/10.1016/b978-0-08-097086-8.24064-6
Rocketship, F., Ali, K., & Braithwaite, B. (2022). Intralinguistic and Crosslinguistic Variation in the Turn-Taking Organization between Deaf-Blind Signers: New Evidence from Bay Islands Sign Language. University of Pennsylvania Working Papers in Linguistics , 28 , Article No. 16.
Scambler, G. (2009). Health‐Related Stigma. Sociology of Health & Illness, 31, 441-455. https://doi.org/10.1111/j.1467-9566.2009.01161.x
Senghas, A., & Coppola, M. (2001). Children Creating Language: How Nicaraguan Sign Language Acquired a Spatial Grammar. Psychological Science, 12, 323-328. https://doi.org/10.1111/1467-9280.00359
Shariff, R. A. (2014). Leaders Who A re Deafblind : A Phenomenological Study of Educational Experiences . Doctoral Dissertation, Gallaudet University.
Smith, T. B. (2002). Guidelines: Practical Tips for Working and Socializing with Deaf-Blind People . Sign Media Inc.
Spear, K. (1994). Is There a Deaf-Blind Culture. Nat ional -Cent er News , 25 , 12-20.
Tactile Communications (2024). Dear Friends and Allies of Tactile Communications, It’s Hard to Believe That a Decade Has Passed since We Opened Tc’s Doors. Facebook . https://www.facebook.com/share/153qCfkbS4/
Tavakol, M., & Dennick, R. (2011). Making Sense of Cronbach’s Alpha. International Journal of Medical Education, 2, 53-55. https://doi.org/10.5116/ijme.4dfb.8dfd
Turner, J. C., & Reynolds, K. J. (2010). Introduction Part 2: The Story of Social Identity . https://openresearch-repository.anu.edu.au/bitstream/1885/24530/8/04_Turner_The_story_of_social_id_2010.pdf
Van Der Mark, L. (2023). Deafblind Tactile Signers: The Dynamics of Communication and Space. Sign Language Studies, 23, 500-526. https://doi.org/10.1353/sls.2023.a905537
Watharow, A., & Wayland, S. (2024). Different Ways of Being, Doing and Telling in Qualitative Research: Lessons from Deafblind Studies. International Journal of Qualitative Methods, 23, Article 16094069241244864. https://doi.org/10.1177/16094069241244864
Willoughby, L., Manns, H., Iwasaki, S., & Bartlett, M. (2020). From Seeing to Feeling: How Do Deafblind People Adapt Visual Sign Languages? In Dynamics of Language Changes (pp. 235-252). Springer. https://doi.org/10.1007/978-981-15-6430-7_15
Wimberly, B. M. (2023). The Past into the Present: The Evolution of a Deafblind Identity . Doctoral Dissertation, Lamar University.
Wolsey, J. (2017). Perspectives and Experiences of Deafblind College Students. The Qualitative Report, 2 2 . https://doi.org/10.46743/2160-3715/2017.2739
Wolsey, J. A. (2018). Resiliency and Adaptability in the Experiences of Deafblind Univ ersity Students . Doctoral Dissertation, Lamar University.
Wright, S. J. (2017). From Deaf to Deaf-Blind: A Phenological Study of the Lived Experiences of Deaf-Blind Individuals in the Deep South . Doctoral Dissertation, Gallaudet University.
Wright, S. J. (2020). Deafnormativity: Who Belongs in Deaf Culture? Disability & Society, 36, 1221-1239. https://doi.org/10.1080/09687599.2020.1787818
Yunashko, B. (2015). Deaf Interpreters: The Weapon against Vidism. Street Leverage. YouTu be . https://www.youtube.com/watch?v=7l4l1MKI5jM