Purpose: The basic aim of this research was to evaluate the Sense of Coherence (SOC) in people with Cerebral Palsy in Greece. Also, the correlation of SOC with their Quality of Life was investigated. Method: For the purposes of the research, a mixed methodological approach was chosen. The Sense of Coherence (SOC) was administered to 37 people with Cerebral Palsy. Semi-structured interviews at Special Educators were also conducted and observation of the participants was carried out in order to collect sufficient data both for their Sense of Coherence and Quality of Life. Results: The results depict high scores of sense of coherence in people with cerebral palsy, which is in significant correlation to their quality of life. It appeared that there was no statistically significant difference between them (Ζ = -0.736, p -value = 0.462) and the significance level was determined at a = 5%. Also, there was no statistically significant differentiation in SOC-score between people with different types of cerebral palsy (F = 0.258, p -value = 0.933), with the significance level at 5%. Conclusion: As a conclusion, people with Cerebral Palsy are satisfied with their everyday life. They can control their feelings and they can cope with unknown situations. They experience pleasant feelings and do not easily experience the emotion of disappointment.
KeywordsCerebral PalsySense of CoherenceQuality of LifeIntellectual Disability
Aaronson, N. K., Acquardo, C., Alonso, J., Apolone, G., Bucquet, D., Bullinger, M., Bungay, K., Fukuhara, S., Gandek, B., Keller, S., Razavi, D., Sanson-Fisher, F. L., Sullivan, M., Wood-Dauphinee, S., Wagner, A., & Ware, J. E. (1992). International Quality of Life Assessment (IQOLA) Project. Quality of Life Research, 1, 349-351. https://doi.org/10.1007/BF00434949
Antonovsky, A. (1987). Unraveling the Mystery of Health: How People Manage Stress and Stay Well. San Francisco: Jossey-Bass.
Antonovsky, A. (1993). The Structure and Properties of the Sense of Coherence Scale. Social Science & Medicine, 36, 725-733. https://doi.org/10.1016/0277-9536(93)90033-Z
Arnaud, C., White-Koning, M., Michelsen, S. I., Parkes, J., Parkinson, K., Thyen, U., Beckung, E., Dickinson, H. O., Fauconnier, J., Marcelli, M., MacManus, V., & Colver, A. (2008). Parent-Reported Quality of Life of Children with Cerebral Palsy in Europe. Pediatrics, 121, 54-64. https://doi.org/10.1542/peds.2007-0854
Blanchflower, D. G., & Oswald, A. J. (2004). Well-Being over Time in Britain and the USA. Journal of Public Economics, 88, 1359-1386. http://wrap.warwick.ac.uk/315/1/WRAP_Oswald_finaljpubecwellbeingjune2002.pdf https://doi.org/10.1016/S0047-2727(02)00168-8
Bobath, B., & Bobath, K. (1975). Motor Development in the Different Types of Cerebral Palsy. London: William Heinemann Medical.
Budden, S. (2005). Cerebral Palsy: Etiology and Classification. Asia-Pacific Childhood Disability Ubdate 2005.
Cohen, L., Manion, L., & Morrison, K. (2011). Research Methods in Education (7th Edition). New York: Routledge.
Dellasoudas, L. G. (2006). Quality of Life of People with Disability. An Indicator of Social Inclusion and Integration (4th Part). Athens: Atrapos.
Eriksson, M., & Lindström, B. (2005). Validity of Antonovsky’s Sense of Coherence Scale: A Systematic Review. Journal of Epidemiology and Community Health, 59, 460-466. https://doi.org/10.1136/jech.2003.018085
Eriksson, M., & Lindström, B. (2006). Antonovsky’s Sense of Coherence Scale and the Relation with Health: A Systematic Review. Journal of Epidemiology and Community Health, 60, 376-381. https://doi.org/10.1136/jech.2005.041616
Eriksson, M., & Lindström, B. (2007). Antonovsky’s Sense of Coherence Scale and Its Relation with Quality of Life: A Systematic Review. Journal of Epidemiology and Community Health, 61, 938-944. https://doi.org/10.1136/jech.2006.056028
Evans, P. M., Evans, S. J. W., & Alberman, E. (1990). Cerebral Palsy: Why We Must Plan for Survival. Archives of Disease in Childhood, 65, 1329-1333. https://doi.org/10.1136/adc.65.12.1329
Gaskin, C. J., & Morris, T. (2008). Physical Activity, Health-Related Quality of Life, and Psychosocial Functioning of Adults with Cerebral Palsy. Journal of Physical Activity & Health, 5, 146-157. https://doi.org/10.1123/jpah.5.1.146
Gersh, E. S. (1998). What Is Cerebral Palsy? In E. Geralis (Ed.), Children with Cerebral Palsy: A Parent’s Guide (2nd Edition, pp. 1-34). Bethesda, MD: Woodbine House.
Hergenroeder, H., & Blank, R. (2009). Subjective Well-Being and Satisfaction with Life in Adults with Spastic Cerebral Palsy: A Pilot Study of a Randomized Sample. Developmental Medicine & Child Neurology, 51, 389-396. https://doi.org/10.1111/j.1469-8749.2008.03169.x
Karalis, I., Langius, A., Tsirogianni, M., Faresjö, T., Nettelbladt, P., & Lionis, C. (2004). The Translation-Validation of the Sense of Coherence Scale into Greek and Its Use in Primary Health Care. Archives of Hellenic Medicine, 21, 195-203.
Koman, L. A., Smith, B. P., & Balakrishnan, R. (2003). Spasticity Associated with Cerebral Palsy in Children: Guidelines for the Use of Botulinum A Toxin. Pediatric Drugs, 5, 11-23. https://doi.org/10.2165/00128072-200305010-00002
Kosmetatou, E. (2010). Quality of Life of Children with Cerebral Palsy. PhD, Athens: Panteion University of Social and Political Sciences, Department of Sociology. http://thesis.ekt.gr/thesisBookReader/id/23007#page/1/mode/2up
Kroustalakis, G. (2005). Children with Special Needs. Athens: Psychological-Educational Treatment.
Kurtz, L. A., & Scull, S. A. (1993). Rehabilitation for Developmental Disabilities. Pediatric Clinics of North America, 40, 629-643. https://doi.org/10.1016/S0031-3955(16)38555-8
Leviton, A., Allred, E. N., Kuban, K. C. K., Hecht, J. L., Onderdonk, A. B., O’shea, T. M., & Paneth, N. (2010). Microbiologic and Histologic Characteristics of the Extremely Preterm Infant’s Placenta White Matter Damage and Later Cerebral Palsy. The ELGAN Study Pediatric Research, 67, 95-101.
Pallant, J. F., & Lae, L. (2002). Sense of Coherence, Well-Being, Coping and Personality Factors: Further Evaluation of the Sense of Coherence Scale. Personality and Individual Differences, 33, 39-48. https://doi.org/10.1016/S0191-8869(01)00134-9
Papadopoulou, E. (2013). Self-Esteem of Children with Special Needs. http://polispost.com/article/2989/i-aytoektimisi-sta-paidia-me-eidikes-%20anagkes
Paraskevopoulos, I. (1993). Methodology of a Scientific Research (Volume Α & Β). Athens: Athens.
Paraskevopoulou-Kollia, E. A. (2008). Methodology of Qualitative Research in Social Sciences and Interviews. Open Education—The Journal for Open and Distance Education and Educational Technology, 4.
Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., & Jacobsson, B. (2007). A Report: The Definition and Classification of Cerebral Palsy April 2006. Developmental Medicine and Child Neurology. Supplement, 109, 8-14.
Sankar, C., & Mundcur, N. (2005). Cerebral Palsy-Definition, Classification, Etiology and Early Diagnosis. Indian Journal Pediatric, 72, 865-868. https://doi.org/10.1007/BF02731117
Spetsiotis, I., & Stathopoulos, S. (2006). Education and Teaching of Children with Motor Problems. Athens: Orion.
Stanley, F., Blair, E., & Alberman, E. (2000). How Common Are the Cerebral Palsies? In Cerebral Palsies: Epidemiology and Causal Pathways Clinics in Developmental Medicine (No. 151, pp. 22-39). London: Mac Keith Press.
Stroulia, E. (2001). Self-Esteem and Social Support of Teenagers with Motor Disabilities. PhD, Athens: National and Kapodistrian University of Athens, Department of Phylosophy, Education and Psycology, Sector of Psychology.
Turner, R. J., & Beiser, M. (1990). Major Depression and Depressive Symptomatology among the Physically Disabled: Assessing the Role of Chronic Stress. Journal of Nervous and Mental Disease, 178, 343-350. https://doi.org/10.1097/00005053-199006000-00001
Vargus-Adams, J. (2005). Health-Related Quality of Life in Childhood Cerebral Palsy. Archives of Physical Medicine and Rehabilitation, 86, 940-945. https://doi.org/10.1016/j.apmr.2004.10.036
Wiley, R., & Renk, K. (2007). Psychological Correlates of Quality of Life in Children with Cerebral Palsy. Journal of Developmental Physical Disability, 19, 427-447. https://doi.org/10.1007/s10882-007-9041-0
World Health Organization, WHO (2011). Presentation: “Designing the Road to Better Health and Well-Being in Europe” at the 14th European Health Forum Gastein. http://www.euro.who.int/__data/assets/pdf_file/0003/152184/R D_Dastein_speech_wellbeing_07Oct.pdf
World Health Organization, WHO (1993). Promoting the Development of Young Children with Cerebral Palsy, A Guide for Mid-Level Rehabilitation Workers. Geneva: World Health Organization.